Members of the Immunology team helped to spread the word about Primary Immunodeficiency (PI) to mark World PI Week in April. The stand in our hospital health information area was well visited. The most popular leaflet was one helping people understand how their amazing immune system works.
ESID, the European Society for Imunodeficiency, will host their biennial meeting in Birmingham’s International Convention Centre in 2020.
Immunologists from Heartlands Hospital led the bid to bring the conference back to the UK for the first time in 30 years. This unique conference combines patient and nursing groups with a medical and scientific meeting, and is the largest Immunodeficiency congress in the world.
2020 will also mark the 50th anniversary of the first NHS Immunodeficiency Centre, founded at Birmingham Heartlands Hospital by Professor Ron Thompson, so we are planning to celebrate Birmingham’s proud record in immunodeficiency care and research.
Once again the sun shone on over 100 people who joined us for our Immunology Patient and Family Day on Sunday 3rd July. Patients and professional speakers all shared their experiences of living and working with immunodeficiency. There were moving and inspiring patient stories, updates on treatment and research, and workshops to explore specific topics in more detail. Of course there was plenty of time to chat and swap stories over coffee and lunch.
We’ve had some great feedback and plan to put a summary of the meeting, photos and patients’ questions on this website soon.
Dr Alex Richter speaking to patients from Heartlands Hospital and University Hospital Birmingham about immunoglobulin products.
This year’s Immunology Patient and Family Day will be held at the Crowne Plaza Hotel NEC on Sunday 3rd July. Patients from anywhere in the West Midlands are welcome to attend. As usual the packed programme will include talks from expert speakers and patients, an excellent lunch and of course plenty of time to chat and share stories. There will be a creche, so bring the kids.
If you would like to attend, call Margaret on 0121 424 0185.
We are delighted to have been invited to co-host the 2015 HAE-UK Patient Day in Birmingham. This annual event is is an opportunity to meet up with many friends who know what it is like to live with this rare condition and to learn from a panel of HAE Experts.
The theme for this year’s day is ‘HAE through all the changing stages of Life’. If you would like more information or to register for the event, see the HAE UK website. We look forward to seeing many of our patients there.
This is a common question from patients, and it is a difficult one for doctors to answer. The West Midlands Primary Immunodeficiency Network has organised a meeting for patients and GPs to try to find some of these answers.
Date: 11/09/2014, time: 18:00-21:00
Venue: IET Austin Court, 80 Cambridge Street, Birmingham, B1 2NP (near NEC)
If you would like to attend, contact Miss Toni Wheatley 0121 5075157, email@example.com
A guide to easy tests for Immunodeficiency can be found by clicking here.
PID UK has put together a detailed report of of our recent Immunology Patient Day. This can downloaded directly from their website here. Many thanks to all of the organisers, participants and patients who made it such a great success.
On a warm Sunday afternoon, 120 Immunology patients and their families came to the West Midlands Patient Day held at the Crowne Plaza NEC hotel in Birmingham. PID and HAE patients from all over the region joined in small group discussions and listened to talks.
Medical and scientific staff updated the audience on the changes in Immunology treatments and services, travelling and living with immunodeficiency and Immunology research in Birmingham. A highlight of the day was a talk from a patient, Tom Peel, who described how he was able to spend 6 weeks in the Borneo jungle despite suffering from immunodeficiency. The clear message was “don’t let your condition stop you doing what you want to do”.
Representatives from national patient support groups PID-UK and HAE-UK were also on hand to help advise and inform the attendees.
The meeting also launched the new West Midlands Immunology Group, a local support group for patients attending Immunology departments throughout the region. Their website www.wmig.co.uk and email contact firstname.lastname@example.org will hopefully form the basis of a growing mutual support network.
A full report of the meeting will be posted on this site soon.
Heartlands patient talks about her journey to diagnosis, treatment and life after being informed you have an Immune deficiency.