Many of our patients are worried about the Covid-19 outbreak. We cannot answer all of your questions individually. However there is guidance available from PID UK, which should be able to answer most of your questions: http://www.piduk.org/
Keep safe and stay at home if at all possible!
Following a thorough assessment and an inspection visit, the West Midlands Immunodeficiency Service was recently awarded full accreditation for the service it provides for children and adults with immunodeficiency and HAE.
A team from the Quality in Primary Immunodeficiency Services (QPIDS) scheme, part of the Royal College of Physicians accreditation unit, visited the service at Heartlands Hospital in October. They were full of praise for the service we provide for our patients with immune disorders. This provides us and our patients with reassurance of the quality of the service, and also helps ensure our continued commissioning as a specialised service.
The service was first accredited in 2012. This year the assessment was against new and rigorous independent standards, and we are only the third centre in the UK to be accredited to these. You can find out more about the QPIDS scheme here.
Many of our patients know the calm and kind voice of Margaret, our secretary. She has been taking calls from our patients for many years, helping them to get the best from our Immunology service. And of course she is an indispensable support for the doctors and nurses on the team.
At the end of our regular team meeting in July, she was amazed to see some old friends and colleagues turn up to celebrate her 40th anniversary at Heartlands hospital.
Professor Ron Thompson, who founded the department 48 years ago, was first to congratulate Margaret on her achievement.
She also received cards and emails from many of the patients who have come to know her over the years. Many thanks for everything you’ve done, Margaret.
Some of our HAE patients and their families joined us on Saturday 17th September for a day of presentations, discussions and a chat over coffee and lunch.
The Heartlands team were joined by Laura Szutowicz from HAE UK, Dr Andrew Volans (A&E consultant from Scarborough) and Laura Dight (Dietician) for a wide-ranging programme.
We will post highlights of the day and more photos on the patient pages soon.
Members of the Immunology team helped to spread the word about Primary Immunodeficiency (PI) to mark World PI Week in April. The stand in our hospital health information area was well visited. The most popular leaflet was one helping people understand how their amazing immune system works.
ESID, the European Society for Imunodeficiency, will host their biennial meeting in Birmingham’s International Convention Centre in 2020.
Immunologists from Heartlands Hospital led the bid to bring the conference back to the UK for the first time in 30 years. This unique conference combines patient and nursing groups with a medical and scientific meeting, and is the largest Immunodeficiency congress in the world.
2020 will also mark the 50th anniversary of the first NHS Immunodeficiency Centre, founded at Birmingham Heartlands Hospital by Professor Ron Thompson, so we are planning to celebrate Birmingham’s proud record in immunodeficiency care and research.
Once again the sun shone on over 100 people who joined us for our Immunology Patient and Family Day on Sunday 3rd July. Patients and professional speakers all shared their experiences of living and working with immunodeficiency. There were moving and inspiring patient stories, updates on treatment and research, and workshops to explore specific topics in more detail. Of course there was plenty of time to chat and swap stories over coffee and lunch.
We’ve had some great feedback and plan to put a summary of the meeting, photos and patients’ questions on this website soon.
Dr Alex Richter speaking to patients from Heartlands Hospital and University Hospital Birmingham about immunoglobulin products.
This year’s Immunology Patient and Family Day will be held at the Crowne Plaza Hotel NEC on Sunday 3rd July. Patients from anywhere in the West Midlands are welcome to attend. As usual the packed programme will include talks from expert speakers and patients, an excellent lunch and of course plenty of time to chat and share stories. There will be a creche, so bring the kids.
If you would like to attend, call Margaret on 0121 424 0185.
We are delighted to have been invited to co-host the 2015 HAE-UK Patient Day in Birmingham. This annual event is is an opportunity to meet up with many friends who know what it is like to live with this rare condition and to learn from a panel of HAE Experts.
The theme for this year’s day is ‘HAE through all the changing stages of Life’. If you would like more information or to register for the event, see the HAE UK website. We look forward to seeing many of our patients there.
This is a common question from patients, and it is a difficult one for doctors to answer. The West Midlands Primary Immunodeficiency Network has organised a meeting for patients and GPs to try to find some of these answers.
Date: 11/09/2014, time: 18:00-21:00
Venue: IET Austin Court, 80 Cambridge Street, Birmingham, B1 2NP (near NEC)
If you would like to attend, contact Miss Toni Wheatley 0121 5075157, firstname.lastname@example.org
A guide to easy tests for Immunodeficiency can be found by clicking here.