Following a thorough assessment and an inspection visit, the West Midlands Immunodeficiency Service was recently awarded full accreditation for the service it provides for children and adults with immunodeficiency and HAE.
A team from the Quality in Primary Immunodeficiency Services (QPIDS) scheme, part of the Royal College of Physicians accreditation unit, visited the service at Heartlands Hospital in October. They were full of praise for the service we provide for our patients with immune disorders. This provides us and our patients with reassurance of the quality of the service, and also helps ensure our continued commissioning as a specialised service.
The service was first accredited in 2012. This year the assessment was against new and rigorous independent standards, and we are only the third centre in the UK to be accredited to these. You can find out more about the QPIDS scheme here.
Some of our HAE patients and their families joined us on Saturday 17th September for a day of presentations, discussions and a chat over coffee and lunch.
The Heartlands team were joined by Laura Szutowicz from HAE UK, Dr Andrew Volans (A&E consultant from Scarborough) and Laura Dight (Dietician) for a wide-ranging programme.
We will post highlights of the day and more photos on the patient pages soon.
Members of the Immunology team helped to spread the word about Primary Immunodeficiency (PI) to mark World PI Week in April. The stand in our hospital health information area was well visited. The most popular leaflet was one helping people understand how their amazing immune system works.
About 30 staff attended a lunchtime drop-in hay fever clinic, delivered by the Allergy team during Allergy Awareness week. Allergy nurses and doctors provided a free assessment of symptoms and advice on how to get the most out of over-the-counter medications, together with other tips to help staff stay well during high pollen counts. Feedback was very positive, with most staff saying they will make big changes to how they manage their hay fever this year. Some staff thought that a short talk or presentation would be helpful so we’ll bear this in mind for next year.
ESID, the European Society for Imunodeficiency, will host their biennial meeting in Birmingham’s International Convention Centre in 2020.
Immunologists from Heartlands Hospital led the bid to bring the conference back to the UK for the first time in 30 years. This unique conference combines patient and nursing groups with a medical and scientific meeting, and is the largest Immunodeficiency congress in the world.
2020 will also mark the 50th anniversary of the first NHS Immunodeficiency Centre, founded at Birmingham Heartlands Hospital by Professor Ron Thompson, so we are planning to celebrate Birmingham’s proud record in immunodeficiency care and research.
The Allergy team is offering free advice to hay fever sufferers working at Heartlands and Good Hope hospitals and the Chest Clinic.
It may seem a bit early to be thinking about hay fever (although if you are allergic to tree pollens you may be getting symptoms already). Grass pollen counts don’t really get going until May, but people with severe hay fever need to be prepared for this beforehand.
Hospital staff can drop in to a free advice clinic on the following dates:
- Heartlands Tues 2nd May 12.00 – 13.15 outside lecture theatre
- Heartlands Wed 3rd May 12.00 – 13.15 outside lecture theatre
- Good Hope Thurs 4th May 13.00 – 14.00 main corridor outside X-ray
- Heartlands Friday 5th May 12.00 – 13.15 outside lecture theatre
- Chest Clinic Mon 8th May 12.45 – 13.30
“Patient-centered care is what you deliver”
“One of the most advanced comprehensive Allergy Services in the UK”
The compliments flowed when the West Midlands Allergy Centre was inspected by the IQAS team on the 14th September. In the first inspection of its kind in the UK, the allergy service at HEFT was awarded full accreditation for providing a safe, effective and evidence-based service.
Patient feedback was an important part of the assessment, and some patients came in person to give the inspectors their views on the service that they had from the allergy team.
Dr Krishna who leads the team said “I am delighted that the first allergy service has achieved IQAS accreditation following a stringent independent assessment by a very experienced team, and am pleased that it has been my centre to do this”.
You can see more details of the inspection at the IQAS website.
Once again the sun shone on over 100 people who joined us for our Immunology Patient and Family Day on Sunday 3rd July. Patients and professional speakers all shared their experiences of living and working with immunodeficiency. There were moving and inspiring patient stories, updates on treatment and research, and workshops to explore specific topics in more detail. Of course there was plenty of time to chat and swap stories over coffee and lunch.
We’ve had some great feedback and plan to put a summary of the meeting, photos and patients’ questions on this website soon.
Dr Alex Richter speaking to patients from Heartlands Hospital and University Hospital Birmingham about immunoglobulin products.
Patients with anaphylaxis and their family and carers will have a new opportunity to meet others with the same problem. The Anaphylaxis Campaign, a UK support group, has established a new local group in Birmingham. Their first meeting will be at Birmingham Heartlands Hospital, Wednesday 8th June 6.30pm at the Innovation Hub meeting room.
You can find details at the Anaphylaxis Campaign website or by contacting firstname.lastname@example.org.
At this time of year sneezing and sniffles could just be a cold. But in some people these symptoms are actually caused by allergies to tree pollens.
From now until late April trees are shedding their pollen to the wind, causing some people misery with allergy symptoms. The treatments are the same as for grass pollen allergies (“hay fever”) – have a look at our information about immunotherapy, which is an effective treatment for some sufferers.