Immunology
Immunodeficiency disorders are rare. High quality clinical research often requires large numbers of patients, so Immunology Centres in the UK and internationally collaborate to increase the numbers of patients studied. This is the only way that we can learn more about these rare conditions and develop new treatments.
Listed here are some of the trials and studies undertaken at the West Midlands Immunodeficiency Centre. If you are interested in participating in a trial, contact the investigator listed,
Trial | Description | Investigator | Status |
UKPIN / ESID database | This UK and European study collects anonymous information about patients with any immunodeficiency disorder. Our aim is to contribute data from all of our patients, with their consent | Dr Aarn Huissoon | Open |
IOS | Survey of treatment of HAE attacks | Dr Anjali Ekbote | Open |
XLA Quality of Life | Questionnaire-based study to examine quality of life in patients with XLA immunodeficiency | Dr Scott Hackett | Closed |
BAT-X | Bleeding Assessment Tool in patients with XLA | Dr Aarn Huissoon | Open |
KVD 900-301 | Trial of KVD 900 in the treatment of HAE | Dr. Anjali Ekbote | Open |
KVD 824 | Trial of KVD 900 in the treatment of HAE | Dr. Anjali Ekbote | Closed |
Ionis CS5 | Trial of Donidalorsen in treatment of HAE | Dr. Anjali Ekbote | Open |
Ionis CS7 | Trial of Donidalorsen in treatment of HAE | Dr. Anjali Ekbote | Open |
House Dust Mite (HDM) | House dust mite Allergy Study | DR. Krishna | Recruitment ended |
STILPAD study | Observational study of interstitial lung disease in CVID | Dr Aarn Huissoon | Closed |
APeX-S | Safety study of new oral treatment to prevent HAE. | Dr Aarn Huissoon | Closed |
APeX-1 | New oral treatment to prevent attacks of HAE | Dr Aarn Huissoon | Closed |
BRIDGE-PID | Genomic studies in immunodeficiency | Dr Aarn Huissoon | Closed |
Genomics England 100K Genome project | Whole genome testing in immunodeficiency | Dr Aarn Huissoon | Closed |
OPuS-2 | New oral treatment to prevent attacks of hereditary angioedema (HAE) | Dr Aarn Huissoon | Closed |
Allergy
Still under construction!